Finally an Update from Italy

Sebastian continues to do well clinically and has been off Peg-ADA since his therapy. He is taught by a teacher who comes to the house several times a week and is doing well in his lessons. Generally he is happy and really enjoys being outside and exercising on his bike and scooter.

After many long months of waiting for test results we finally have some word as to what is going on with Sebastian's immune system. We held off updating the blog until we received these results. It appears his immune system is slowly getting stronger and his t-cell counts are improving. Unfortunately, his numbers are not increasing as well as the younger patients in the study. We hope that in the coming months his "numbers" continue to increase. If they stay at the current levels we will have to entertain other options.

We thank you for keeping Sebastian in your thoughts.