Sebastian's Space

This blog is about our son who has a rare genetic disease called Severe Combined Immunodeficiency (SCID). His form of SCID is linked to a deficiency of the adenosine deaminase (ADA) enzyme. Basically, Sebastian doesn’t have an immune system and is very susceptible to infections that wouldn’t harm healthy children. He is currently participating in a Gene Therapy trial in Italy.

Friday, June 29, 2007

Good News From Italy


Today we received word that Sebastian has passed all of his tests required to move forward with his treatment. We were anxiously awaiting the results and are now thrilled. We look forward to boarding a plane and returning to Italy when the new batch of vector has met the approval process. We miss hearing and speaking Italian, it is now time to practice learning more. Sebastian looks forward to seeing his "friends" (the hospital staff) in Italy.

We would like to thank our families, the Italian hospital (the AMAZING doctors and staff), his American doctors and staff, our Canadian friends (go Parker!) and all the kind people who have helped us get to this point. The journey is still not over, but we feel extremely fortunate to be able to pursue his treatment with your support. Thank you all for the positive thoughts and prayers.