Sebastian's Space

This blog is about our son who has a rare genetic disease called Severe Combined Immunodeficiency (SCID). His form of SCID is linked to a deficiency of the adenosine deaminase (ADA) enzyme. Basically, Sebastian doesn’t have an immune system and is very susceptible to infections that wouldn’t harm healthy children. He is currently participating in a Gene Therapy trial in Italy.

Monday, October 22, 2007

Still Home

Yes, it's true, we are still home. The most recent batch of medicine didn't pass quality control, which postpones our return trip until next year. At first we were disappointed to learn this news, but we are focusing on the positive. It'll be nice to be home for the holidays. It's also a relief that we won't be putting Sebastian on a plane and then having him spending time in and out of the hospital during the flu season. We expect to find out in February the results of the current batch and hope to return to Italy in March, 2008. In the meantime, our mission will be to keep Sebastian healthy.