Returning Home

We are returning home this week! Ideally, Dr. Aiuti would like us to stay for another 3 months to monitor Sebastian, as the next 3 months are a crucial time; however, we want to get on a plane before flu season gets underway and Lynette's leave of absence is over. The decision to come home was not an easy one to make. We weighed all of the pros and cons and feel that going home now would be best for us. His medications and the use of a mask will help protect him.

After meeting with Dr. Aiuti and getting an assessment of Sebastian's health, it seems things are headed in the right direction; more time is necessary to see if T-cell production will get to better levels in the coming months. Sebastian will continue to be monitored at UCSF, and they will work closely with Dr. Aiuti. We are lucky to have a great team of doctors and nurses at home too.

It's exciting to know that we will be home in a couple of days, although we know that we'll go through a period of culture shock, and it'll take a little time to adjust, as we've experienced from past travels. With Sebastian's situation, we have learned to be cautious and take every care to protect his health. Upon our return, we will need to be even more careful than we've had to be in the past, while we wait for his immune system to improve. He will not be able to attend school or have much interaction with other people. We are in contact with his school and a teacher will be coming to our house to provide Sebastian with his 1st grade education.

Thanks to all for your help, positive thoughts and interest in Sebastian. We would also like to thank Dr. Aiuti and all the scientists, doctors and nurses who have worked hard to help Sebastian. We look forward to being back in touch with family, friends and co-workers soon. Lynette works for Williams-Sonoma and we would like to extend a special thanks to the company and all of the great people there who have been extremely supportive over the years.