Sebastian's Space

This blog is about our son who has a rare genetic disease called Severe Combined Immunodeficiency (SCID). His form of SCID is linked to a deficiency of the adenosine deaminase (ADA) enzyme. Basically, Sebastian doesn’t have an immune system and is very susceptible to infections that wouldn’t harm healthy children. He is currently participating in a Gene Therapy trial in Italy.

Tuesday, January 01, 2008

Happy New Year!


We hope everyone enjoyed the holidays and we wish everyone the best for 2008. We don’t have any new news from Italy, but we will update the blog as soon as we do, which we expect this month. Since Sebastian cannot visit Santa at the mall or events that other children go to, Santa made a special visit to Sebastian’s Grandma and Grandpa’s house (of course, he had his suit cleaned first). Thanks Santa! Despite the fact that Sebastian’s immune system is slowly declining, he continues to remain “healthy”. We are thankful for that.

posted by ©W @ 8:12 PM