Sebastian's Space

This blog is about our son who has a rare genetic disease called Severe Combined Immunodeficiency (SCID). His form of SCID is linked to a deficiency of the adenosine deaminase (ADA) enzyme. Basically, Sebastian doesn’t have an immune system and is very susceptible to infections that wouldn’t harm healthy children. He is currently participating in a Gene Therapy trial in Italy.

Sunday, April 06, 2008

Six.


Today Sebastian turned six years old. We all had a nice day. In the back of my mind I was thinking this is all possible because of talented scientists and doctors who have dedicated their life's work to understanding how our bodies function and coming up with cures for very complex ailments. Thank you—Grazie.

There is a beautiful, two year old Canadian girl with the same condition as Sebastian, who we have been following for some time. Take a look at the video her mom made.