Tests & Play

This week Sebastian has had many miscellaneous tests. We hope that the next family that has to go through the SCID-ADA roller coaster ride will benefit from some of the data points that he is able to contribute. Our little guy was able to have some fun play time with his Canadian buddy, and now that he has gone back home, he will surely be missed.

By next weekend Sebastian will be in what they call the "box" and now that he is no longer receiving Adagen shots we will need to be more cautious with him, e.g., having him wear a mask at the hospital, keeping him out of stores, no park play. I never thought that we would say we look forward to spending 40 days or so in "isolation", but I think we are as ready as we will ever be and look forward to getting past this upcoming step in a few weeks.

We are all adjusting well to our life in Italy and Sebastian hasn't shown any signs of feeling homesick. When we aren't at the hospital he enjoys playing with his legos and video game. He's even doing school work, which he'll get a break from in isolation.