Isolation Preparation

After another week of multiple tests, we are preparing to go into isolation tomorrow. We reviewed the rules that we must follow during this period and we visited the room we'll be staying in. Sebastian will be limited to a very small area inside of a bigger room. We can go in his area as long as we wear a gown and mask. Only one parent can be there at a time, so one of us will stay during the day and the other will stay at night. Our understanding is that the first week will be the toughest, with 3 days of chemo treatment and his bone marrow harvest on Monday. By Friday he will have the corrected gene re-infused, which is the big day we've been waiting for! 30 days following re-infusion, he'll have another bone marrow aspiration, which will give us the first indication if the gene therapy has worked. It's hard to imagine what the upcoming weeks have in store for us. We will just have to take each day as it comes and do our best to keep Sebastian entertained, and most importantly, to keep him healthy. Please understand if we do not update blog during this period of isolation.